Living my best life
How I'm Beating IV Cervical Cancer
Living my best life
Living my best life
Living my best life
Whether it's you or someone you know, I recommend starting on the 'To-Do' page and exploring the rest of the site from there.
Explore the 'Get Healthier' tab with a special focus on 'diet' and 'lifestyle' pages. There is some helpful info on the 'supplements' and 'alternative therapy' pages too, for more ailments than just Cancer.
I've spent a LOT of time reading food labels and searching for lectin-free substitutes that are also low-sugar. Use my frequently updated cheat sheets for easy shopping!
It all started a few days before my 35th birthday on Memorial Day weekend 2022. I was on a high, scuba diving freely in Bonaire for a week when one night after my dinner, my leg swelled up massively. Concerned it could be a blood clot, I went to the ER. They confirmed it wasn't a clot, just an enlarged lymph node near my bikini line probably from an infection, causing inflammation. 'Have fun diving and check it out back home in 6-8 weeks if it persists', they said. I joked that my 'fat leg' probably had a tequila worm still floating around from my stint in Mexico last year. But one thing lead to another back home and by 5th of July, I had confirmed it was stage 3B cervical cancer that had spread into my nearby lymph nodes. Horrified was an understatement. The typical reaction to hearing cancer has spread into someone's lymph system is to think 'oh sh!t, that is bad'.
Technically, this was a recurrence of stage 1B cervical cancer that I dealt with in 2014, as a result of HPV. I had a cervical biopsy in Miami and my surgeon there recommended a trachelectomy after because they didn't get clear margins. This had only been done on <100 people in the US and I didn't want to be a guinea pig. So, I had a second opinion and cone biopsy at Sloane Kettering, the leaders of gynecological oncology. After that, I was given a clean bill of health with instruction for bi-annual check ups, which I did. I got the HPV vaccine in 2019 and even this April, I had no signs of irregularity on my check-up. Turns out I'm one of the 1% whose cancer cells didn't make a tumor, but managed to spread into multiple lymph nodes in the inguinal (groin) and periaortic areas. Had my leg never swelled up, it would've gone completely undetected spreading around my body.
The first 4 days after diagnosis, I could barely eat or sleep - all I could think about and research was cancer. I was terrified, freaking the f out, while at the same time trying to remain calm and positive, because stress causes cancer to spread 30x faster. "Don‘t despair. This is the 21st century." Those words from a random acquaintance stuck with me when my mind turned on itself so many times. I immediately changed my diet and loaded up on supplements. I read tons of books, medical articles, reddit threads - you name it. Both my doctor and new oncologist at UM Sylvester Center had agreed on 6 rounds of chemo (cistplatin and taxol) & immunotherapy (keytruda and avastin). I was shocked at what very little else they offered and flew to the Cancer Center for Healing, an integrated medicine center in Irvine, CA for a third opinion.
While I definitely wasn't excited for the toxic effects of chemo and immunotherapy, I knew I needed to do it to nuke this and be done with cancer for good. But I was going to try everything else I possibly could which I'd learned about in that lightening-fast month. I created an in-depth action plan for how to improve every part of my life and cure this 'fat leg', and in doing so, the shock wore off and was replaced with determination. I had a chemo port installed (awful experience but great long-run) and a week later, I had my first round of treatment on 8/8. It took over 10 hours. There is so much doom around the 'C word' but in reality, 50% of the population will deal with it and it doesn't mean an automatic death sentence. This is just as much a mental attack as it is physical. I told myself 'I will be clean by Halloween', and visualized that goal constantly.
Aside from a bald-ish head and fat leg that is still swollen 4 months and counting, I don't feel like a cancer patient. I have nothing to complain about and everything to be thankful for. I've never felt luckier! There are 2 paths you can choose: one where you feel depressed, sorry for yourself and accept whats happening with no hope. Or you can decide you're going to be fine and do literally everything you can to ensure that. Find the silver linings in everything. I changed my diet and discovered through research/ testing what I needed to supplement in, so my body is reflecting that with a happier digestive system, stronger immune system, and better physical appearance. Increased mindfulness practice has lead me to be the happiest, most positive, gratuitous version of myself that I can remember. Plus, all of the alternative therapies I've incorporated have helped practically eliminate any potential side effects and boost my energy despite the toxic chemicals I'm injecting every 3 weeks. Literally living my best life despite cancer! I'm excited to report that my midway PET scan on 9/26 showed my lymph nodes are normal, cancer-free, and there was no new growth!
So why come out and be so open with such a personal part of my life? I could cringe about that, but all I really want to do is help others in any way that I can. I've received help and support from so many people, some I've known forever and others that entered cosmically. I've learned an incredible amount of information not only about cancer, but about health and well-being in general. And it only took a threat on my life to seek it out!
This site is my way of sharing resources and experiences that can help others, whether they're sick or not. I considered myself a 'healthy' person before, but I realize now that there was a lot of room for improvement. I will continue to update here as I learn more. Is this everything? Not even close, but for now it's a jump off to open your eyes and make some changes for the better. A lot of the things you can do to prevent cancer will also prevent other health issues and diseases. While I'm not a trained doctor and can't prescribe medical advice, I will credit my sources accordingly.
It is 9/22/25 as I write this. I'm far past due for an update, but here goes... I'll try to keep it short but I do enjoy painting a full picture :)
I finished the chemo in December of 2022. I felt great, PET scans were clear, so I treated myself to a road trip out west to go snowboarding for 2 months using the Ikon pass, visiting friends along the way. I was loving life in the mountains, including a little apres ski and carbs on a cold day. I started a new job in Miami that is hybrid: 2 days a week there and the other 3 wherever. I moved back to Florida and based myself in the Keys where it was more calm, and my family comes and goes with frequency. Very quickly, all of my new, healthy habits faded away. I was now sedentary in my office job, drinking with friends many days a week, not fasting, not exercising, no sauna, eating more and more inflammatory foods. I continued the keytuda and avastin until April, and decided then to go off it since my scans were clear. By then, I had gained back all of the weight I'd lost and then some - over 20 pounds. The crazy part was that eventually my right leg had stopped being swollen, but then my left leg started swelling instead. It was especially bad after drinking - even just one seltzer had an almost immediate effect... tequila not so much. I felt uncomfortable in my own skin, but felt like I couldn't shake the weight. I didn't make enough of a point to exercise, so it continued on as I yolo'd my way through the bars with my friends, internally feeling like total shit and embarrassed that I'd slipped so far back down the rabbit hole. 2023 should have been an exciting year of growth and 'rebirth' if you will, but I was miserable and felt so alone as everyone stopped checking on me and family was north for the summer. Around August, I reached the highest weight I've ever been. I felt sick about it and further isolated myself from going out as a punishment until I showed improvement. I immediately started to exercise - walking and riding my bike, and going out on a paddle board I bought on Facebook... the best $200 I've spent. Slowly the scale began to tip back, but my left leg was still swelling. However, my PET scan that month was still clear. With nothing to worry about, I booked a solo trip over the holidays. I decided to go on a scuba liveaboard to a dream destination in Raja Ampat, Indonesia. I started the trip in the Philippines on an exciting and extensive journey to the tiny island of Malapascua to see thresher sharks. Then I went to Bali for the second time for a few days before getting on the yacht for 10 days sailing around Raja. The whole experience re-awakened something in me that had gone quiet for nearly a year and a half. I felt truly free and alive again! I even met a breast cancer survivor who I really connected with during that time, and we are still friends now. She stayed sober and is now 5+ years in remission. She would keep telling me to cut the alcohol, but I enjoy it too much for the social aspect. I've been drinking 20+ years. Coincidentally, I went on a few dates with a guy in Bali that was also sober for a few years. I pondered it for myself, but found it uninteresting and brushed it off as uneccasary.
After returning from that trip, I felt energized and back to my old pre-cancer self again – better than I’d felt in a very long time. I continued refocusing attention to losing weight and reducing inflammation, and to start re-building a social life in Miami as well as the Keys. I started dating again, but with that came much more frequent drinking (they don’t call it the Keys disease for nothing). Around Mother’s Day, I met a guy, and we hit it off instantly in a way I hadn’t in years. We both love being on the water, traveling, going out, and we had very similar dispositions and values.
Not even 3 weeks later, I met with my Dr at UM and requested a routine check-up PET scan. I’d had weird pangs in the lymph node area where I’d previously had the cancer. They would come and go sporadically and didn’t really hurt, but it was weird to me. He was against it because it was before the year since the previous scan and figured insurance wouldn’t cover it, but gave it a go after my persistence. Days after my birthday, and about 2 years to the date of my first ever ultrasound in Bonaire, the PET scan showed activity on the ovaries and in my left adrenal gland. The left ovary in particular had a cyst on it. He showed the results to a tumor board at UM, and collectively they determined it was likely a cyst from physiological changes, aka my menstrual cycle. We would wait 6 weeks and then retest with an ultrasound. I sighed with relief and went on my merry way with my new boyfriend, both of us happier than we’d been in longer than we could remember. I recall telling him this one night in the dark, before falling asleep, and he reciprocated. But then I turned away and teared up, thinking to myself how scared I was that this could all come crashing down if my cancer was back. I’d thought what if I’d finally met my person, and all I’d have with him was a few more months? Was the universe that twisted? Or would it be my last gift, to not be alone this time around? My mental state was in turmoil. I kept it to myself and buried it as much as I could, focusing on Reality and staying positive. It could be nothing, after all. It is horrible how much your mind can turn on itself.
At the 6 week mark around 4th of July, I got the ultrasound on my pelvic area. The results didn’t show any improvement, so my Dr. then recommended we do a diagnostic laparoscopic surgery. I’ve never wanted kids and didn’t care about keeping all of the parts that have caused me trouble over the years. I’d already told him to just take everything out after the PET scan months before as a way of prevention plus peace of mind, but he didn’t want to put me into surgical menopause. The odds of cancer spreading into my ovaries was extremely rare, <2%. With this surgery, he would make tiny incisions to insert a camera to look at the ovary in question and everything else around there. If he needed to remove it, that was a possibility.
On July 29th, I underwent the surgery. My heart sunk as I came to after and I could feel the pain of an incision around my bikini line. The nurse told me he had taken it out because it was cancerous – they’d tested it on the spot. He had left everything else though. I cried not only because it was back and I was coming off anesthesia, but also because I was upset he didn’t take everything else with it. The cut was similar to one of a c-section, through the muscle. I was on bedrest in so much pain that I could barely get up for ten days. Thankfully, my parents and bf were there the whole time to take care of me. I worked from home for a month while recovering. Just 3 weeks later, I started the same regimen of chemo and immunotherapy as I did in 2022.
I was surprised to do the same drugs as before, but once the decision was made, I felt calmer and ready to get the ball rolling again. Only this time, I’d have eyebrows! I got micro-bladed, restyled my wig, shaved my head, and ordered an infrared sauna for my house… probably the same amount of money I’d save by not drinking the next 6 months. I saw a therapist but for the most part, I felt ok with the support of my friends and family, and felt that this 2nd time around would be as easy and successful as the first, if not easier since I’d already been through it before.
At this point, I’d heard a podcast from Dr Stegall that high-dose vitamin C IVs had been studied more, and proven ineffective in much besides reducing side effects. I went back to the hyperbaric chamber I went to before just one time. The headache I had afterwards was so intense I couldn’t drive home all the way without stopping. (I think this had to do with the Avastin dosage, which is highest on your first round and gets smaller afterwards. I didn’t take it on my first round of chemo in 2022.) Afterwards, while in NY, I went to visit their facility there for a session. They decided against allowing me to use it, as there have been more studies showing that it could potentially be harmful to cancer patients; they didn’t want to take the risk. I was surprised by these advancements in studies in just 2 short years, but thankful that they are gaining attention.
Once again, I was done just after Thanksgiving. The lack of alcohol and kick-start back to my healthy lifestyle got me back to a weight I felt comfortable. My legs hadn’t been swollen in months, and I was a pro at fasting. Only this time, I knew there would be no going back to the old ways. I’d been given a second (or third) chance, if you will, and I have 0 intention of blowing it.
I told my Dr thank you when I was done and that respectfully, I looked forward to never coming back with a laugh. He told me not so fast, we have to do a PET to make sure I don’t need anymore chemo. Naively, I was shocked. I never thought that that was even an option given the success from the first time. I scheduled it asap and got the results back on Christmas Eve while I was home. The other ovary still had activity on it, and the adrenal gland’s had decreased, but it was still picking up something. I felt devastated it wasn't the same results as my first time years before, but also told myself to stay positive and assume the best, not the worst. But at this point, things are progressively more and more terrifying, and I realized maybe I can't control it all.
It was only at this time that I learned ovaries are 'sanctuary sites' for cancer, where chemo likely won't work there because the drugs don't penetrate these areas well enough to be effective. These "sanctuaries" can lead to relapses even after systemic chemotherapy has seemingly cleared the disease elsewhere in the body. (Other sites include testicles, brain, and spinal cord.) I still don't understand how this info was never shared with me before, in order to take more educated decisions that greatly affect my chances of survival.
I immediately scheduled the follow up ultrasound when I got home before NYE. It was a much more somber start to the New Year than I had hoped for.
The ultrasound now showed cysts on the other ovary, the one my Dr had visually inspected and deemed healthy just months before, despite SUV uptake on the scans. (Because a naked eye can tell… queue the eyeroll) At this point, we both agreed to finally do the total hysterectomy I wanted. Knowing that my luck is wearing out, I reached back out to Dr Weisenthal because I wanted to do the cytometric profiling test again to determine which drugs, if any (should I need them), would be the most effective at killing off the last of the cancer cells in my body. My Dr wouldn’t agree to it because he wasn’t sure there would be enough tissue sample to share with them. I got the patient advocate involved and still couldn’t get a clear answer if they would partner. Dr Weisenthal’s team even reached out the day before the surgery on my behalf, to no avail. Frustrated, I wrote the advocate that I wanted an acknowledgement in writing that they would at least try to meet my requests, as I’d only received verbal rejections. This was my life in jeopardy. My emotions were also heightened because my relationship had ended just days before, when I told him this adventure wasn’t done yet and I’d need yet another surgery. Good riddance, but my cortisol was through the roof as a result. I didn’t have an answer from the Dr by the end of the day, so I made my way to Miami and decided I’d feel out the situation in the morning when I met him at the hospital. My aunt was already on her way down from NY to meet me, since my parents were traveling. Only my Dr beat me to it, calling me first thing in the morning in an angry tone and cancelling my surgery, stating the trust was broken and he no longer felt comfortable being my surgeon or Dr. I was stunned but also surprisingly, relieved. I quickly switched gears into action mode, and scheduled the same procedure at Memorial Sloane Kettering with Dr Ginger Gardner, the same surgeon who’d performed my LEEP over 10 years prior. It was a night and day difference in the way she and the staff there made me feel – completely at ease, heard, and understood. They openly agreed to share my sample with Dr Wiesenthal as much as possible, and would also use my tissue in the MSK-IMPACT program: a comprehensive tumor sequencing test developed to detect targetable DNA mutations. Every MSK patient who has surgery here will have tissues submitted, so it will constantly be updated with new information for cures. They scheduled quickly in early February, and I can honestly say it was a breeze. I had a few more laparoscopic incisions, but nothing major as with the oophorectomy performed just months before.
The ovary came back as malignant as well. Thankfully, there was tissue for all tests including Dr Weisenthal’s. His test came back showing that the chemo drugs I used the 2nd time were not so effective to my cancer anymore, as it was now resistant to it. If I could've gone back in time....
I proceeded immediately looking for a new Dr, as UM had kicked me out permanently after the ordeal (patient advocate, my ass). In this time, I met with gyn-oncs at MSK, Weill-Cornell, Moffitt, Baptist MCI, and Integrated Dr Mark Rosenberg in Boca for opinions on what to do next.
Ultimately, the team at MCI was great and being local, makes the most sense to go to. My Dr there answered every question I could think of, and is open to integrative oncology methods prescribed by Dr. Rosenberg. He doesn’t just turn down ideas because they are not in the ‘standard of care’. They also have infusions of my keytuda/ avastin available at 2 locations near my home in the Keys. I wish I’d had this available during my longer chemo days – it would have saved so much time and money on hotels, etc. I wish I’d listened to my gut and switched Drs from the beginning. Note to anyone going through any medical situation – you need to like your Dr and you need to trust them. If something feels off about them, you need to ‘shop around’ even if they’re the so-called best at what they do. Because at the end of the day, this is your life you’re trusting them with, and you need to feel they have your best interests at heart. A Dr who worries about pre-mature menopause more than pre-mature death due to metastatic cancer is not seeing the big picture, for reasons I still don’t understand.
All of the oncos I consulted with prescribed the same ‘watch and wait’ technique now that my tumor was gone. I’d continue on with my Keytruda and avastin as planned, and there would be no more chemo. Relieved, I decided with my Dr that we would aggressively follow-up with PET scans every 3 months, and Signatera CTC blood tests every 6 weeks. In addition, we added the labs for CA 125, CEA, and CA 19-9 to my pre-treatment labs every 3 weeks, just to monitor for any slight changes. I also started taking the TM prescribed by Dr. Rosenberg, to further beat down any remaining cancer cells. My scan in the spring still showed some light uptake in the left adrenal gland. After my hysterectomy, my labs still showed elevated levels. My Signatera came back at 22 – lower but not acceptable. I had another scan in May and once again, almost on my birthday, received shitty results. The adrenal was still suspicious. My UM Dr had ignored this because the odds of cervical cancer going there was practically unheard of, but thankfully my MCI Dr wasn’t overlooking it. I’d stated my concerns from the get go that it was weird that it had shrunk during chemo, and he agreed. I had mentioned this to all the Drs during my consults; looking back it is odd to me that only one addressed it before I did as being suspicious. Come to find out, the adrenals can also be sanctuary sites for cancer, not only from chemo but immunotherapy too.
I immediately planned a consult with the leading adrenal expert in the country (thankfully in Tampa), followed by a diving trip to Egypt + safari in Tanzania, because balance. I had the trip of a lifetime, came home, and met with the surgeon in person. On July 15th, I had the surgery performed - my third in less than a year. Add 4 more incision sites, and it now officially looks like I lost a knife fight lol. It was quick and relatively painless due to Dr Carlin’s expertise – he performs over 500 of these surgeries per year. They tested the gland on the spot and it did show malignancy, so I feel incredibly thankful that I didn’t wait on this one. He said he only sees cases like mine maybe once per year, .02% where the primary site is cervical. I joke that its time I start playing the lotto with these ridiculous odds.
I had to spend the night there while they tested my other adrenal gland to make sure my hormone production was normal. I couldn't sleep, probably because of the drugs or maybe just the hospital environment. In my insomnia, I looked back through old PET scan results from the get go. The ovary activity was there all along, and written off as physiologic. The adrenal activity had been there for only a year. It hit me again that so much of this could have been avoided if we'd been more aggressive.
I'd also always had notes of a thyroid nodule and while it wasn't ever given attention, I didn't want it to be the next thing overlooked for too long. Thankfully, the thyroid Dr there did an ultrasound before I checked out the next morning. He even offered to do a biopsy there on the spot, but reassured me that it would be nearly impossible for it to have traveled there without activity in the nodes, and if anything, it would be a secondary cancer (gee, thanks). This Dr is the top thyroid Dr in the US as well, with the hospital named after him, so I trusted him. But within days, I felt anxious about it and wrote him. He arranged the biopsy within a week. It showed no cancer, just signs of lymphocytic thyroiditis aka Hashimoto's, which can happen after chemo. Since I don't have any outward symptoms, I've been managing with gluten free/ low dairy diet and all the other functional recommendations. The peace of mind is priceless.
My Signatera test a month later was…. Drumroll…………. ZERO! I don’t think I’ve ever felt so proud, relieved, excited, happy, and thankful! At this point, I’ve healed up well, and beat the very shitty odds. I never found out until recently, that cervical cancer has a 70% recurrence rate, and that the overall 5 year survival rate is less than 5% in patients that can only have chemo. Had I known these statistics, I would have been much more diligent after completing chemo the first time. I would have self-advocated more, asked more questions, and test more frequently. I wouldn't pushed for the surgery from the start. But, we don't know what we don't know and we can't go back - only make the most educated decisions possible going forward.
It is still a long (and strict) road ahead, but I’m proof that all of the lifestyle changes made are what is helping extend my life now. There have even been more studies coming out now studying inflammation and a correlation with rates of cervical cancer, citing alcohol as a culprit. My current Dr said that it is amazing that the tumor on the adrenal gland barely grew in the past 2 years. My case is incredibly unique, but I sleep a little better at night knowing that the ovaries and adrenal glands are 2 of the very few ‘sanctuary sites’ for cancer, where chemo and/ or immuno aren’t as effective, and they're gone. The cervix and surrounding organs are gone so no further threat from them, and my lymph nodes have been clear since 2022, thank god. The cancer has not lasted anywhere else in my body, and I know that I’m strong enough to keep it out. I have the will and the fight inside to stay alive until my 90s, lord willing. I pray that this is the last of my updates until I celebrate my 40th birthday in a May ’27 – it will surely be a party!
Until then, I will continue fasting, getting my morning walks in, strength training, eating right, sleeping right, supplementing, meditating, sauna-ing, learning and researching, and focusing on the positive/ cutting out the toxic. Continuing maintenance therapy and TM, constant testing, everything - and of course, aqua adventures 😊
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